OUR PUBLIC INVOLVEMENT GROUP
The Northern Ireland Cerebral Palsy Register (NICPR) has a public involvement (PI) group that is made up of people with cerebral palsy (CP), their families and carers. This group was created to involve the public in all aspects of our work including our research. More information on the roles and responsibilities of the group can be found by downloading the group's terms of reference. The group's objectives for 2019/20 can be downloaded here.
Current PI group members include:
- Claire Kerr, Lecturer, QUB
- Karen McConnell, NICPR Research Fellow, QUB
- Monica Acheson, Public Representative
- Sharon Campbell, Public Representative
If you are interested in joining the group please contact us.
JOIN OUR NICPR COMMUNITY
At the NICPR we recognise the importance of working together with people with CP, their families, friends and carers, to make sure our work is relevant and useful to those who need it. You can join the NICPR community mailing list to keep up to date with our news, events and ways to get involved in our work. If you would like to subscribe please fill in your details here or scan the QR code on our flyer.
WHY WE DO PUBLIC INVOLVEMENT
The Northern Ireland Cerebral Palsy Register (NICPR) was selected as one of 10 UK-wide ‘test-bed’ projects to test the National Institute for Health Research (NIHR) National Standards for Public Involvement in Research. This involved working with the NIHR and Public Health Agency (NI) from April 2018 to April 2019 to help establish if the NIHR Standards work in practice and to share what we learnt from using the Standards. To download a copy of the Standards for Public Involvement in Research please click here.