- The NICPR is a confidential record of children with cerebral palsy in Northern Ireland.
- The NICPR is held at Queen's University Belfast and funded by the Public Health Agency (NI)
- We have data access agreements with the five Health and Social Care Trusts to maintain NICPR
- Contact from parents and people with cerebral palsy is particularly welcome.
We received ethical approval from the Office for Research Ethics Northern Ireland (ref 13/NI/0159, Oct. 2013) and have up to date (2016) Data Access Agreements with all five Health and Social Care Trusts as well as with Business Service Organisation and Northern Ireland Statistics and Research Agency.
The Northern Ireland Cerebral Palsy Register is collaborating in the Transition project. This project aims to provide evidence which will enable NHS Commissioners and Trusts to provide successful transition services for young people with complex health needs. The study involves 4 annual visits to young people with diagnosis of Autisim Spectrum Disorder, Diabetes and Cerebral Palsy. The total number of participants in the project is 375. There are 109 young people with cerebral palsy in the project and almost half of them are from Northern Ireland. Information on the characteristics of yougn people who completed the first visit has been published ("Characteristics of young people with long term conditions to transfer to adult health services") and you can access the article in this link.
If you would like to know more about the progress of this project, please contact us (telephone: 028 9097 1616; email: email@example.com). Equally, this is a link to the website of the project TRANSITION.
Funded by National Institute of Health Research (NIHR) in collaboration with Newcastle University, Northumbria & Birmingham NHS Trust.
Venue: Stockholm Waterfront Congress Centre. Map
Dates: 1-4 June, 2016. Pre-conference symposia 31May-1 June
This conference is a joint meeting of the 5th International Conference of Cerebral Palsy (ICPC), the 28th Annual Meeting of the European Academy of Childhood Disability (EACD) and the 1st Biennial Meeting of the International Alliance of Academies of Childhood Disability (IAACD).
ICPC conferences have been devoted to all aspects of Cerebral Palsy, from early diagnosis to standards of care and new therapeutic approaches as well as novel advances of research in Neurosciences.
The EACD is an association of over 500 professionals working with children with disability representing more than 35 European countries. Members include paediatricians, neuro-paediatricians, allied health professionals, psychologists, nurses, social workers and special needs teachers.
The newly stablished IAACD is an international collaboration born from the efforts of the EACD, the American Academy for Cerebral Palsy and Developmental Medicine and the Australasian Academy of Cerebral Palsy and Developmental Medicine.