- The NICPR is a confidential record of children with cerebral palsy in Northern Ireland.
- The NICPR is held at Queen's University Belfast and funded by the Public Health Agency (NI)
- We have data access agreements with the five Health and Social Care Trusts to maintain NICPR
- Contact from parents and people with cerebral palsy is particularly welcome.
We received ethical approval from the Office for Research Ethics Northern Ireland (ref 13/NI/0159, Oct. 2013) and have up to date (2016) Data Access Agreements with all five Health and Social Care Trusts as well as with Business Service Organisation and Northern Ireland Statistics and Research Agency.
Cerebral Palsy: Implications for Practice
The Northern Ireland Cerebral Palsy had the pleasure to co-host the above event with the British Association for Community Child Health. The event counted with presentations by those listed below
- Mrs Fionnuala McAndrew, Director of Social Care and Children, Health and Social Care Board, opening speaker presenting the Child and Young People’s Strategic Partnership. For a copy of her presentation click here
- Dr Oliver Perra, PI of the NICPR who presented an update on the work carried out by the NICPR team/. For a copy of his presentation click here
- Dr Claire Lundy, Julia Maskery, Tina Weston and Brona McDowell who presented recent service developments in the tertiary Neurodisability service in Northern Ireland. For a copy of their presentation on Selective Dorsal Rhizotomy click here
- Dr Neil Wimalasundera from Great Ormond Street Hospital and whose presentation focused on the management of eating and drinking difficulties in neurodisability
- Dr Brid Farrell, Assistant Director of Service Development, Safety and Quality in Public Health Agency, who presented the Child Health System. For a copy of her presentation click here
- Dr Ben McNaughten, Dr Gail Davidson and Dr Mairead McGinn who presented findings from clinical audits recently conducted regarding the use of oral medication for the management of spasticity and the role of community paediatricians in hip surveillance for children with CP. For a copy of the presentation of the audit on oral medication click here and for the presentation on hip surveillance click here
- Dr Karen Horridge from Sunderland Health Care NHS Foundation Trust and who presented Disability Matters, a free e-learning tool for anyone who works with disabled children and young people. For a copy of her presentation click here
- Sheila McNeill, paediatric physiotherapist in the Belfast Health and Social Care Trust and who presented the recently developed Regional Physiotherapy Care Pathway for CP. For a copy of her presentation click here
- Professor Allan Colver from Newcastle University who presented preliminary findings from the Transition study and recent studies on the brain development in teenagers. For a copy of his presentation click here
This event received a very positive feedback from those attending. For a summary on delegates' feedback please click here