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Links

Here are some useful links to other webpages:

OTHER REGISTERS, NETWORKS & RESEARCH CENTRES

The North of England Collaborative Cerebral Palsy Survey

Surveillance of Cerebral Palsy in Europe

United Kingdom Cerebral Palsy (UKCP) - former Register

Cerebral Palsy Register for Scotland - former Register

4 Child:  Four counties database of cerebral palsy, vision loss and hearing loss in children

CanChild Centre for Child Disability Research (at the McMaster University Canada)

 

CHARITIES & SUPPORT GROUPS

Cedar Foundation 

Enable Ireland 

Scope 

Capability Scotland 

Hemihelp

CP SUPERHEROES (young person's pages)

 

 

PROFESSIONAL ASSOCIATIONS

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

European Academy of Childhoodl Disability (EACD)

 

RESEARCH STUDIES

Sparcle Study (A study of participation and quality of life for 8-12 year old children with cerebral palsy)

Transition study (A study of how to improve the transition of young people with complex health needs from children to adult health services)

How can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood?: Longitudinal study.

JOURNALS

Developmental Medicine & Child Neurology

Child: care, health & development (at this page you can access one of our papers on physiotherapy services)

Journal of Advanced Nursing

Contact Information

Northern Ireland Cerebral Palsy Register
Room 1.36
Mulhouse Building
Queen’s University Belfast
Grosvenor Road
Belfast BT12 6BJ

Telephone: 028 9063 5045
Email:  e.garciajalon@qub.ac.uk

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