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Publications

Some of our latest publications

 

Colver AF; Thyen U; Arnaud C; Beckung E; Fauconnier J; Marcelli M; McManus V; Michelsen SI; Parkes, JL; Parkinson K; Dickinson H.  "The association between participation in life situations of children with cerebral palsy and their physical, social and attitudinal environment: a cross-sectional multi-centre study" Archives of Physical Medicine and Rehabilitation, 2012, in press.

Dickinson H; Rapp M; Arnaud C; Carlsson M; Colver AF; Fauconnier J; Lyons A; Marcelli M; Michelsen SI; Parkes, JL; Parkinson K, "Predictors of drop-out in a multi-centre longitudinal study of participation and quality of life of children with cerebral palsy" BMC research notes, 2012, in press.

Parkes, JL; Donnelly C (PhD Student); McDowell B; Duffy C. "Recruitment bias and clinical characterstics of participants with severe cerebral palsy in a cross-sectional survey" Journal of Advanced Nursing, 2012 Feb;68(2):368-78.

Colver AF; Dickinson H; Parkinson K; Arnaud C; Beckung E; Fauconnier J; Marcelli M; McManus V; Michelsen SI; Parkes, JL; Thyen U.  "Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European.  Disability and Rehabilitation, 2011, Vol. 33, pp. 28-35.

Kerr, C; McDowell, B; Parkes, JL; Stevenson, M; Cosgrove, A.  "Age-related changes in energy efficiency of gait, activity, and participation in children with cerebral palsy" Developmental Medicine and Child Neurology, 2011, Vol. 53, pp. 61-67.

McCullough, N; Parkes, JL; Kerr, C; McDowell BC. "The health of children and young people with cerebral palsy: A longitudinal, population-based study." International Journal of Nursing Studies, 2011 Feb 15. [Epub ahead of print].

Parkes, JL; Carvale B; Marcelli M; Franco F; Colver AF. "Parenting stress and children with cerebral palsy: a European cross-sectional survey" Developmental Medicine and Child Neurology, 2011 Sep;53(9):815-21.

Dolk H; Pattenden S; Bonnellie S; Colver AF; King A; Kurinczuk J; Parkes, JL; Platt MJ; Surman G. "Socioeconomic variation in cerebral palsy prevalence" Paediatric and Perinatal Epidemiology, 2010, Vol. 24, pp. 149-155.

Madden, SP; Parkes, JL.  "The impact of intellectual impairment on the quality of life of children with cerebral palsy" Learning Disability Practice, 2010, Vol. 13, pp. 28-33.

Nurse, S; Parkes, JL.  "The neonate at high risk of cerebral palsy: issues in nursing care and management" Journal of Neonatal Nursing, 2010, Vol. 16, pp. 215-220.

Parkes, JL; Hill N. "Number and needs of children and young people with cerebral palsy" Paediatric Nursing, 2010, Vol. 22, pp. 14-19.

Parkes, JL; Hill N; Platt MJ; Donnelly, CM.  "Oromotor dysfunction and communication impairments in children with cerebral palsy: a Register study" Developmental Medicine and Child Neurology, 2010, Vol. 52, pp. 1113-1119.

Parkes, JL; McCullough, N; Madden, SP. "To what extent do children with cerebral palsy participate in everyday life situations?" Health and Social Care in the Community, 2010, Vol. 18, pp. 304-315. 

Earlier papers

Fauconnier J; Dickinson H; Beckung E; Marcelli M; McManus V; Michelsen SI; Parkes, JL; Parkinson K; Thyen U; Arnaud C; Colver A.  "Participation of 8-12 year old children with cerebral palsy: a cross-sectional European Survey" British Medical Journal, 2009 Apr 24;338:b1458. doi: 10.1136/bmj.b1458.

Michelsen SI; Flachs EM; Uldall P; Erikson EL; McManus V; Parkes, JL; Parkinson K; Thyen U; Arnaud C; Beckung E; Dickinson HO; Fauconnier J; Marcelli M; Colver AF.  "Frequency of participation of 8-12 year old children with cerebral palsy: a multi-centre cross sectional European study" European Journal of Paediatric Neurology, 2009, Vol. 13, pp. 165-177. 

McCullough, N; Parkes, JL; White-Koning, M; Beckung, E; Colver, A. "Reliability and Validity of the Child Health QuestionnairePF-50 for European Children with Cerebral Palsy" Journal of Pediatric Psychology 2009, Vol. 34, pp. 41-50.

Parkes, JL; McCullough, N; Madden, SP; McCahey E (Student).  "The health of children with cerebral palsy and stress in their parents: a population-based survey" Journal of Advanced Nursing, 2009, Vol. 65, pp. 2311-2323.

Parkes, JL; White-Koning M; McCullough, N; Colver AF.  "Psychological problems in children with hemiplegia" Archives of Disease in Childhood, 2009, Vol. 94, pp. 429-433.

Surman G; Hemming K; Platt MJ; Parkes, JL; Green A; Hutton J; Kurinczuk J. "Children with cerebral palsy in the United Kingdom: Trends in severity" Paediatric and Perinatal Epidemiology, 2009, Vol. 23, pp. 513-521.

2008

Arnaud C; White-Koning M; Michelsen SI; Parkes, JL; Parkinson K; Thyen U; Beckung E; Dickinson HO; Faunconnier J; Marcelli M; McManus V; Colver AF.  "Parent reported quality of life of children with cerebral palsy in Europe" Pediatrics, Vol. 121, pp. 54-64.

Beckung E; White-Koning M; Marcelli M; McManus V; Michelsen SI; Parkes, JL; Parkinson K; Thyen U; Arnaud C; Fauconnier J; Colver AF.  "Health status of children with cerebral palsy living in Europe: a multi-centre study" Child: Care, Health and Development, 2008, Vol. 34, pp. 806-814.

Donnelly C (PhD student); Parkes, JL; McDowell B; Duffy C.  "Lifestyle limitations of children and young people with severe cerebral palsy: a population study protocol" Journal of Advanced, 2008, Vol. 61, pp. 557-569. 

Kerr, C; Parkes, JL; Stevenson, M; Cosgrove AP; McDowell BC. "Energy efficiency in gait, activity, participation, and health status in children with cerebral palsy." Developmental Medicine and Child Neurology, 2008, Vol. 50(3), pp. 204-210.

McCullough, N; Parkes, JL.  "Use of the Child Health Questionnaire in children with cerebral palsy: a systematic review and evaluation of the psychometric properties" Journal of Pediatric Psychology, 2008, Vol. 33, pp. 80-90.

Parkes, JL; McCusker, C.  "Common psychology problems in children with cerebral palsy" Paediatrics and Child Health, 2008, Vol. 18, pp. 427-431.

Parkes, JL; White-Koning M; Dickinson HO; Thyen U; Arnaud C; Beckung E; Fauconnier J; Marcelli M; McManus V; Michelsen SI; Parkinson K; Colver A. "Psychological problems in children with cerebral palsy" Journal of Child Psychology and Psychiatry, 2008, Vol. 49, pp. 405-413.

2007

Dickinson H. O.; Parkinson K. N.; Ravens-Sieberer U.; Schirripa G.; Thyen U.; Arnaud C.; Beckung E.; Fauconnier J.; McManus V.; Michelsen S. I.; Parkes, JL; Colver A. "Self-reported quality of life of 8-12 year old children with cerebral palsy: a cross-sectional European Study" The Lancet, 2007, Vol. 369 (9580), pp. 2171-2178.

Dolk H.; Parkes, JL; Hill N.  "Trends in the prevalence of cerebral palsy in Northern Ireland, 1981-1997" Developmental Medicine and Child Neurology, 2006, Vol. 48 (6), pp. 406-412.

Kerr, C; McDowell B. C.; Parkes, JL. "Interobserver agreement of the Gross Motor Function Classification System in an ambulant population of children with cerebral palsy" Developmental Medicine and Child Neurology, 2007, Vol. 49 (7), pp. 528-533.

White-Koning M.; Arnaud C.; Dickinson H.; Thyen U.; Beckung E.; Fauconnier J.; McManus V.; Michelsen S.; Parkes, JL; Parkinson K.; Schirripa G. (deceased); Colver A. F. "Determinants of Child-Parent Agreement in Quality-of-Life Reports: A European Study of Children With Cerebral Palsy" Pediatrics, 2007, Vol. 120 (4), pp. e804-e814.

2006

Dickinson H; Parkinson K; McManus V; Arnaud C; Beckung E; Fauconnier J; Michelsen SI; Parkes, JL; Schirripa G; Thyen U; Colver A.  "Assessment of data quality in a European multi-centre cross-sectional study of quality of life of children with cerebral palsy" BMC Public Health, 2006, Vol. 6, pp. 273.

McClelland J.F.; Parkes, JL; Hill N.; Jackson, J; Saunders K.J.  "Accommodative dysfunction in children with cerebral palsy: a population based study" Investigative Ophthalmology and Visual Science, 2006, Vol. 47(5), pp. 1824-1830.

Parkes, JL; Kerr C.; McDowell B.C.; Cosgrove A. P. "Recruitment Bias in a Population-Based Study of Children with Cerebral Palsy" Pediatrics, 2006, Vol. 118 (4), pp. 1616-1622.

Surman G; Bonellie S; Chalmers J; Colver A; Dolk H; Hemming K; King A; Kurinczuk J; Parkes, JL; Platt MJ.  "UKCP: A Collaborative network of cerebral palsy registers in the United Kingdom" Public Health, 2006, Vol. 28, pp. 148-156.

2005

McDowell BC; Kerr, C; Parkes, JL; Cosgrove AP.  "Validity of a 1 minute walk test for children with cerebral palsy." Developmental Medicine and Child Neurology, 2005, Vol. 47(11), pp. 744-748.

2004

Parkes, JL; Hill N; Dolk H; Donnelly, M.  "What influences physiotherapy use in children with cerebral palsy?" Child: Care, Health and Development, 2004, Vol. 30, pp. 151-160.

Parkes, JL; Donnelly, M; Dolk H; Hill N.  "Use of physiotherapy services and alternatives by chidlren with cerebral palsy" Child: Care, Health and Development, 2002, Vol. 28, pp. 469-477.

Reports

Herron S; Parkes, JL; Donnelly, M.  "Evaluation of the CrisP service: A report to the Northern Ireland Council of Orthopaedic Development (NICOD)", 1997.

Parkes, JL; Dolk H; Hill N. "Children and Young People with Cerebral Palsy in Northern Ireland - Birth years 1977 to 1997. A comprehensive Report from the Northern Ireland Cerebral Palsy Register", 2005, Commissioned report.

Parkes, JL; Donnelly, M; Hill N.  "Focusing on Cerebral Palsy: Reviewing and Communicating Needs for Services", 2001, Report commissioned by SCOPE.

Parkes, JL; Dolk H; Hill N.  "The Northern Ireland Cerebral Palsy Register: Birth years 1977-1992. A Progress Report."  1997.  Report to the Department of Health & Social Services Northern Ireland.

Parkes, JL; Dolk H; Hill N.  "Use of physiotherapy services by children with cerebral palsy. Preliminary report to the Department of Health and Social Services", 1996.  Report to commissioners of research (Department of Health & Social Services Northern Ireland).

Parkes, JL; Dolk H; Hill N.  "The Northern Ireland Cerebral Palsy Register: Birth years 1977-1989. A Progress Report" 1995.  Report to funders.

Parkes, JL; Dolk H; Hill N.  "Number and needs of children with cerebral palsy. Report to Hemi-Help Northern Ireland" 1994.  Report to UK charity.

Related Book Chapters

Parkes J and Clarke S.  Children with complex motor disability.  IN: Glasper E A and Richardson J.  (Eds) (2006) A Textbook of  Children’s and Young People’s Nursing. Churchill Livingstone, Elsevier. Edinburgh.

Parkes J.  Cerebral palsy.  IN:  Yarnell, J (Ed) (1st Ed) (2006) Epidemiology and Prevention:  A Systems based approach.  Oxford University Press.

Contact Information

Northern Ireland Cerebral Palsy Register
Room 1.36
Mulhouse Building
Queen’s University Belfast
Grosvenor Road
Belfast BT12 6BJ

Telephone: 028 9063 5045
Email:  j.parkes@qub.ac.uk

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