Publications
Colver AF, Dickinson H, Parkinson K, Arnaud C, Beckung E, Fauconnier J, Marcelli M, McManus V, Michelsen SI, Parkes J & Thyen U. Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study. Disability and Rehabilitation, 2010, early online, DOI: 10.3109/ 09638288.2010.485669
Parkes J, McCullough N & Madden A. Participation of children with cerebral palsy: a population-based study. Health & Social Care in the Community, 2010. May;18 (3):304-15. Epub 2010 Feb 24.doi: 10.1111/j.1365-2524.2009.00908.x
Parkes J. & Hill N. Number and Needs of Children and Young People with Cerebral Palsy. Paediatric Nursing, 2010, May, Vol 22 (4): 14-19.
In press
Parkes J, McCullough N & Madden A. Participation of children with cerebral palsy: a population-based study. Health & Social Care in the Community. Accepted 2009, in press.
Parkes J & Hill N. Number and needs of children and young people with cerebral palsy. Paediatric Nursing. In press.
Dolk H with Parkes J et al. Socioeconomic variation in cerebral palsy prevalence. Paediatric & Perinatal Epidemiology. In press.
Published Papers (2006 - to date)
Surman G, Hemming K, Platt MJ, Parkes J, Green A, Hutton J & Kurinczuk JJ. Children with cerebral palsy in the UK: Trends in severity. Paediatric and Perinatal Epidemiology, [Epub ahead of print Aug 11 2009] DOI: 10.1111/j.1365-3016.2009.01060.x
Parkes J, McCullough N, Madden A & McCahey E. The health of children with cerebral palsy and stress in their parents: a population-based survey. Journal of Advanced Nursing, 2009 65 (11), 2311–2323.
Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, Parkes J, Parkinson KN, Thyen U, Arnaud C, Colver A Participation of 8-12-year-old children with cerebral palsy: a cross-sectional European study. British Medical Journal, 2009, Apr 24;338:b1458. doi: 10.1136/bmj.b1458
Parkes J, White-Koning M, McCullough N & Colver A. Psychological problems in children with hemiplegia. Archives of Disease in Childhood, 2009, 94, 6, 429-433.
Deeney K, Lohan M, Parkes J and Spence D. Experiences of fathers of babies in intensive care. Paediatric Nursing, 2009, February, 21, 1: 45-47.
Michelsen SI, Flachs EM, Uldall P, Eriksen EL, McManus V, Parkes J, Parkinson KN, Thyen U, Arnaud C, Beckung E, Dickinson HO, Fauconnier J, Marcelli M, Colver A. Frequency of participation of 8-12-year-old children with cerebral palsy: A multi-centre cross-sectional European study. European Journal of Paediatric Neurology, 2009, 13, 165-177. [2008 Jun 19 Epub ahead of print].
McCullough N, Parkes J, White-Koning M, Beckung E, Colver A. Reliability and Validity of the Child Health QuestionnairePF-50 for European Children with Cerebral Palsy. Journal of Pediatric Psychology, 2009, 34: 41-50; doi:10.1093/jpepsy/jsn048 [Epub ahead of print 2008 May 22]
Beckung E, White-Koning M, Marcelli M, McManus V, Michelsen S, Parkes J, Parkinson K, Thyen U, Arnaud C, Fauconnier J, Colver A. Health status of children with cerebral palsy living in Europe: a multi-centre study. Child: care, health and development, 2008, 34, 6; 806-814.
Kerr C, Parkes J, Stevenson M, Cosgrove AP, McDowell BC. Energy efficiency in gait, activity, participation, and health status in children with cerebral palsy. Developmental Medicine & Child Neurology, 2008, 50 (3): 204-10. [Epub 2008 Jan 21].
Arnaud C, White-Koning M, Michelsen SI, Parkes J, Parkinson K, Thyen U, Beckung E, Dickinson HO, Fauconnier J, Marcelli M, McManus V, Colver A. Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics. 2008 Jan;121(1): 54-64.
Parkes J & McCusker C. Common psychological problems in children with cerebral palsy. Paediatrics and Child Health, 2008 18 (9): 427-431.
Parkes J, White-Koning M, Dickinson HO, Thyen U, Arnaud C, Beckung E, Fauconnier J, Marcelli M, McManus V, Michelsen SI, Parkinson K, Colver A. Psychological problems in children with cerebral palsy: a cross-sectional European study. Journal of Child Psychology & Psychiatry, 2008; 49 (4): 405-13. [Epub 2007 Dec 12].
Donnelly C, Parkes J, McDowell B, Duffy C. Lifestyle limitations of children and young people with severe cerebral palsy: a population study protocol. Journal of Advanced Nursing, 2008, 61 (5):557-69. [Epub 2007 Nov 22].
McCullough N, Parkes J. Use of the child health questionnaire in children with cerebral palsy: a systematic review and evaluation of the psychometric properties. Journal of Pediatric Psychology, 2008 Jan-Feb;33 (1):80-90. [Epub 2007 Aug 28]. Review.
White-Koning M, Arnaud C, Dickinson HO, Thyen U, Beckung E, Fauconnier J, McManus V, Michelsen SI, Parkes J, Parkinson K, Schirripa G, Colver A. Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy. Pediatrics. 2007, 120 (4):e804-14.
Dickinson HO, Parkinson KN, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, Beckung E, Fauconnier J, McManus V, Michelsen SI, Parkes J, Colver AF. Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study. Lancet. 2007, 30, 369 (9580): 2171-8.
McDowell BC, Kerr C, Parkes J. Interobserver agreement of the Gross Motor Function Classification System in an ambulant population of children with cerebral palsy. Developmental Medicine & Child Neurology, 2007, 49 (7): 528-33.
Dickinson H, Parkinson K, McManus V, Arnaud C, Beckung E, Fauconnier J, Michelsen SI, Parkes J, Schirripa G, Thyen U, Colver A. Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy. BMC Public Health. 2006 Nov 6;6:273.
Parkes J, Kerr C, McDowell BC, Cosgrove AP. Recruitment bias in a population-based study of children with cerebral palsy. Pediatrics. 2006, 118 (4): 1616-22.
Dolk H, Parkes J, Hill N. Trends in the prevalence of cerebral palsy in Northern Ireland, 1981-1997. Developmental Medicine & Child Neurology, 2006, 48 (6): 406-12; discussion 405.
McClelland JF, Parkes J, Hill N, Jackson AJ, Saunders KJ. Accommodative dysfunction in children with cerebral palsy: a population-based study. Investigative Ophthalmology & Vision Science, 2006, 47 (5): 1824-30.
Surman G, Bonellie S, Chalmers J, Colver A, Dolk H, Hemming K, King A, Kurinczuk JJ, Parkes J, Platt MJ. UKCP: a collaborative network of cerebral palsy registers in the United Kingdom. J Public Health. 2006, 28 (2): 148-56. Epub 2006 Mar 23. Erratum in: J Public Health. 2006 Dec;28(4):400.
Reports
Parkes J., Dolk H and Hill N. (2005) Children and Young People with Cerebral Palsy in Northern Ireland – Birth Years 1977-1997. A Comprehensive Report from the Northern Ireland Cerebral Palsy Register. Queen’s University Belfast.
Parkes J., Donnelly M., and Hill N. (2000) Focusing on Cerebral Palsy: Reviewing and Communicating Needs for Services. Scope (Commissioned)
Parkes, J., Dolk, H. and Hill, A. E. (1999) The Northern Ireland Cerebral Palsy Research Project. A report to the Department of Health and Social Services, Northern Ireland. Health and Social Care Research Unit, The Queen’s University of Belfast.
Parkes, J. Dolk, H. and Hill, A. E. (1997) The Northern Ireland Cerebral Palsy Register: Birth years 1977-1992. A Progress Report. Health and Social Care Research Unit, The Queen’s University of Belfast.
Herron, S., Parkes, J. and Donnelly, M. (1997) Evaluation of the CrisP service: A report to the Northern Ireland Council of Orthopaedic Development (NICOD). Final Report. Health and Social Care Research Unit, The Queen’s University of Belfast.
Parkes, J., Dolk, H., Hill, A. E. (1996) Use of physiotherapy services by children with cerebral palsy. Preliminary report to the Department of Health and Social Services. Health and Social Care Research Unit, The Queen’s University of Belfast.
Parkes, J., Dolk, H. and Hill, A. E. (1995) The Northern Ireland Cerebral Palsy Register: Birth years 1977-1989. A Progress Report. Health and Social Care Research Unit, The Queen’s University of Belfast.
Parkes, J., Dolk, H. and Hill, A. E. (1994) Number and needs of children with cerebral palsy. Report to Hemi-Help Northern Ireland. Health and Social Care Research Unit, The Queen’s University of Belfast. A voluntary agency run by parents of children with hemiplegia.
Parkes, J., Dolk, H. and Hill, A. E. (1993) Children with cerebral palsy in the Northern Health and Social Services Board. Report to the Childcare Needs Assessment Project. Health and Social Care Research Unit, The Queen’s University of Belfast.
Parkes, J., Dolk, H. and Hill, A. E. (1993) Children with cerebral palsy in the Northern Health and Social Services Board. Report to Barnardo’s Home from Home Project. Health and Social Care Research Unit, The Queen’s University of Belfast.
Related Book Chapters
Parkes J and Clarke S. Children with complex motor disability. IN: Glasper E A and Richardson J. (Eds) (2006) A Textbook of Children’s and Young People’s Nursing. Churchill Livingstone, Elsevier. Edinburgh.
Parkes J. Cerebral palsy. IN: Yarnell, J (Ed) (1st Ed) (2006) Epidemiology and Prevention: A Systems based approach. Oxford University Press.
