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Research Projects

 

Locomotor Ability in Cerebral Palsy

Principal investigators

Mr Aidan Cosgrove, Dr Brona McDowell, Dr Claire Kerr (Belfast Health & Social Care Trust, Musgrave Park Hospital), Dr Jackie Parkes (Queen's University)

Funded by

Northern Ireland Research & Development Office, in Recognised Research Group 8 (Trauma and Rehabilitation)

Duration

2002-07/08

Outline

This study is investigating changes in the locomotor abilities of children with ambulant cerebral palsy, aged 4-16 years over time.

For more information contact:

  claire.kerr@belfasttrust.hscni.net


 

SPARCLE

A study of participation and quality of life of 8-12 year old children with cerebral palsy

Principal investigators

Professor Allan Colver (Newcastle University, P.I.) with Dr Jackie Parkes (Queen's University, Local Co-ordinator), Mrs Ann Madden (Queen's University, Local Research Associate) and seven other Local Co-ordinators and Research Associates from other EU countries including France, Sweden, Italy, Denmark and Republic of Ireland.

Funded by

EEC Research Framework 5 (Quality of Life)

Duration

2002-05/06

Outline

This study is investigating the role of ‘environmental factors’ (access, transport, social policy, attitudes, service arrangements) on participation and quality of life for 8-12 year old children with cerebral palsy of all abilities.

For more information contact:

allan.colver@ncl.ac.uk

 j.parkes@qub.ac.uk

Also see Sparcle's own website by clicking here .


LiLaC Study

Lifestyle limitations in children and young adults with severe cerebral palsy

Principal investigators

Mrs Collette Donnelly (Royal Belfast Hospital for Sick Children) supervised by Drs Jackie Parkes (Queen's University Belfast) & Dr Brona McDowell & Miss Catherine Duffy (Belfast Health & Social Care Trust, Musgrave Park Hospital)

Funded by

Northern Ireland Research & Development Office, Doctoral Fellowship Scheme

Duration

2006-10

Outline

This study is investigating the prevalence of orthopaedic problems (hip dislocation, pelvic obliquity, spinal deformity, orthopaedic-related pain) and their relationship with participation and health in children and young people aged 4-25 years with severe cerebral palsy (GMFCS levels IV and V).

For more information contact:

brona.mcdowell@belfasttrust.hscni.net or j.parkes@qub.ac.uk


Life expectancy in cerebral palsy

 

Principal investigators

Professor Jane Hutton (University of Warwick, Principal Investigator) with Dr Karla Hemming and UKCP partners including Dr Jackie Parkes and Professor Helen Dolk

Funded by

Medical Research Council (MRC)

Duration

2001-2004/05

Outline

This study utilises the registry data already collected by the UKCP partners to investigate regional and clinical variations in survival among the childhood population with cerebral palsy.

For more information contact:

  J.L.Hutton@warwick.ac.uk


Use of physiotherapy & alternatives by children with cerebral palsy

 

Principal investigators

Ms Jackie Parkes, Dr Helen Dolk, Dr Nan Hill & Dr Michael Donnelly

Funded by

Special Fellowship Royal Belfast Hospital for Sick Children; Department of Health and Social Services Northern Ireland

Duration

1994-1998 COMPLETED

Outline

This study used the NICPR as a sampling frame to survey the views and experiences of parents with a child with moderate – severe cerebral palsy.

For more information contact:

j.parkes@qub.ac.uk

One of the papers from this study has remained in the top five most accessed online papers with the journal of Child: care, health and development (click here to read more).


Inequalities in pregnancy outcome

 

Principal investigators

Professor Helen Dolk (University of Ulster, Principal Investigator) with Dr John Jenkins in collaboration with others including UKCP partners

Funded by

Northern Ireland Research & Development Office; Commissioned Programme – Targeting Social Need

Duration

2004-2006

Outline

This study will replicate a larger survey based in Great Britain exploring inequalities in pregnancy outcomes.  One of the outcome measures used will be cerebral palsy rates and the extent to which they vary by socio-economic indicators across the United Kingdom.

For more information contact:

h.dolk@ulster.ac.uk

Contact Information

Northern Ireland Cerebral Palsy Register
Room 1.36
Mulhouse Building
Queen’s University Belfast
Grosvenor Road
Belfast BT12 6BJ

Telephone: 028 9063 5045
Email:  e.garciajalon@qub.ac.uk

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