The PRAXIS Consortium consists of five Cancer Registries
- Northern Ireland (Belfast)
- North Western, Merseyside and Cheshire (Manchester and Liverpool)
- Trent (Sheffield)
- Northern and Yorkshire (Leeds)
- Thames (London)
There are three other cancer registries in England and one covering Wales. North Western and Merseyside currently operates on two physical sites with separate databases. Cancer registries are not autonomous bodies; each registry therefore has its own host organisation, and adheres to the governance arrangements of that host. These are NHS Trusts (predominantly) or Universities. The source of registry funding is the NHS public health budget, allocated via Regional Directors of Public Health. In framing their service, cancer registries are required to adhere to national standards (now Cancer Registry Measures, published in October 2005).
The PRAXIS software was originally developed for Thames by a commercial software house and subsequently also implemented by the Trent and Northern Ireland registries. As ‘Version 9’ it has operated successfully in these registries for over ten years. During the last seven years or so, support and on-going development of the software has been undertaken ‘in house’ by staff within those three registries.
The Northern and Yorkshire Cancer Registry and Information Service (NYCRIS) and North Western and Merseyside registries are now also committed to converting to PRAXIS and are well advanced with their migration strategies. The new version of PRAXIS will be the means of enabling them to meet the new national requirements for cancer registries, set out in ‘Cancer Registration: Summary of Priorities and Actions’ (December 2004). This includes a requirement on all registries to move towards ‘electronic’ data receipt and processing by the end of 2006, and to have the capability to receive and process all the data items within the new cancer registry minimum data set (CRDS) (see ‘Developing PRAXIS’ below).
The brief of the PRAXIS Consortium is to manage and develop the PRAXIS software, to support the ‘Cancer Registration’ database held by each registry, and its associated processes. A PRAXIS Board (Director level) and PRAXIS Technical Group (PTG) (IT Managers) and Real Users Group (PRUG) (registration and QA staff) have been established. Support is also provided by the National Cancer Registration Coordinator. Each registry in the Consortium contributes funding to the project. [Read More]