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Life after prostate cancer diagnosis

Life after prostate cancer diagnosis

Prostate cancer is the most common cancer in men in the United Kingdom, however, the treatments given can impact on the men’s quality of life and also the quality of life of their partners/spouses. This project aims to find out what effect prostate cancer has had on men’s physical, emotional and social wellbeing, as well as exploring the impact on their families. The combined results will lead to a detailed picture of what life is like for men with prostate cancer across the UK.  Information will be gained on how circumstances can change over time, what helps the men cope with any problems and what gaps there are in support and care services.

Patients will be asked a range of questions on generic, cancer specific and prostate cancer specific patient reported outcome measures. The topics covered will include urinary and bowel  functioning, sexual functioning, psychological and social well-being as well as physical social and financial concerns.

The English arm of the investigation is due to start July 2015  and it is hoped that Northern Ireland, Scotland and Wales will begin to issue questionnaires in Jan/Feb 2016 to men diagnosed between 1st November 2012 and 31st October 2014. In order to track changes over time, the men surveyed in Jan/Feb 2016 will be resurveyed in Jan/Feb 2017. A further separate cohort of men diagnosed between 1st November 2014 and 31st October 2015 will also be surveyed; this separate cohort will be used to monitor service changes over time.

A normative study is also going to be carried out in Northern Ireland, this is to allow the hypothesis testing that significant differences in health outcomes in prostate cancer patients exist when compared to the general population.  Individuals in the normative study will be aged matched within a 5 year band, and also matched on socio-economic quintile to those on the LAPCD.

Ethical approval has been granted for the English arm of the investigation, whilst ethical approval is currently being sought for the normative study and the devolved nations arm.

Below is a link to a webinar presentation which was given by Dr Anna Gavin and Dr Therese Kearney via Prostate Cancer UK in June of 2015. The webinar discusses some of the results from the All Ireland patient reported outcomes study on men with prostate cancer (2010-2013) and also gives an overview of the planned research within the Life After Prostate Cancer Diagnosis Study (2014-2017). 

Some members of the LAPD Research Team

Conan Donnelly
Therese Kearney
Anna Gavin