All welcome.  

• The third in this series of Rare Diseases Public seminars is focused on the concept “Living with a Rare Disease”
• Laura Eagn, Chair of Rare Ireland will address common and unique challenges of children and their families experience of living with rare chromosomal disorders.
• Anne Lawlor, Chair of 22q11 Ireland will be discussing life as a Rare Parent.
• Julie Power will be addressing the day-to-day challenges of living with a rare illness.
• Les Martin will discuss the importance of expansion of newborn screening programme in Ireland.

Please do save the date and take time to join us for a promising discussion!

Remote Webinar: All welcome

25th of February 2021 (12.30-14.00)

Please register at this link for this living with a rare disease webinar

Chairs:

Avril Daly: Vice-President of EURORDIS

Dr Emma Nicholson: Research Fellow, UCD Centre for Interdisciplinary Research, Education and Innovation in Health Systems (UCD IRIS), UCD.