What is the NILS?

The Northern Ireland Longitudinal Study (NILS) is a large-scale, representative data-linkage study created by linking data from the Northern Ireland Health Card Registration system to the 1981, 1991, 2001 and 2011 Census returns and to administrative data from other sources.  These include vital events registered with the General Register Office for Northern Ireland (such as births, deaths and marriages) and the Health Card registration system migration events data. The result is a 30 year plus longitudinal data set which is regularly being updated. In addition to this rich resource there is also the potential to link further Heath and Social care data in our distinct linkage projects (DLPs).

Selection into the study is based on birth date (day and month): 104 dates throughout the year were selected and if an individual’s date of birth coincided with one of these they were included in the sample. The sample is large - c. 28% of the Northern Ireland population (approximately 500,000 individuals and accounting for approximately 50% of households). It is designed for statistics and research purposes only and is managed by NISRA under Census legislation. The data are de-identified at the point of use; access is only from within a strictly controlled ‘secure environment’ and governed by protocols and procedures to ensure data confidentiality.

 

We are very pleased to announce the new version of our data dictionary interface featuring: full variable information, advanced search options and the ability to save your own variable lists between sessions. We would greatly appreciate your thoughts on the new system so please find out more...

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