At the end of each month a yellow report card is sent out to more than 100 health care professionals across Northern Ireland. Professionals are asked if they have seen a 'new' child (ie. newly diagnosed or newly referred) with suspected or definite cerebral palsy during the last month.
ASSESSMENT FORMS (BOOKLET)
Children and young people notified to the NICPR are followed up with a standardised assessment form presented as a yellow booklet. Clinicians and epidemiologists designed the assessment form for the specific purpose of reporting motor impairment of central origin (Evans et al 1989). The standardised assessment form is primarily an epidemiological tool.
The assessment form includes information about abnormal tone and unwanted movements (type and distribution), oral-motor involvement (articulation of speech, swallowing problems, drooling/dribbling), head and neck and trunk control, lower and upper limb involvement, information about the medical diagnosis and presence and severity of associated impairments (intellect, communication, seizures, vision and hearing) and some birth history (birthweight, gestation and number born). To download a copy of the assessment form please click here.
We encourage good practice among notifiers to keep families informed about the NICPR and have developed information materials for parents and guardians. The information leaflet was compiled with the help and approval of the Advisory Committee including taking account of the views and comments of a parent representative. To download a copy of the information leaflet please click here, or if you have any comments on the leaflet please contact us.
The NICPR sends a quarterly newsletter to notifiers. These newsletters address areas of practice and research that have been raised by stakeholders. To sign up to receiving the NICPR notifier newsletter please click here. Alternatively, you can click on the following links to download our historical newsletters.
- Patient and Public Involvement in Cerebral Palsy Research, July 2019
- Physical Activity in Cerebral Palsy, March 2019
- Eating, Drinking and Swallowing Difficulties in Cerebral Palsy, December 2018
- Sleep Disturbances in Cerebral Palsy, October 2018
- Functional Classification of Cerebral Palsy, April 2018
- Prevalence of Cerebral Palsy, January 2018