Chronic Illness and Palliative Care

The Chronic Illness and Palliative Care research theme aims to improve the quality of cancer survivorship and palliative care

THEME OVERVIEW

In our research on Chronic Illness and Palliative Care we are helping to bring high quality palliative care to a broader range of under-served populations, for example in our research on supportive decision-making with patients with dementia in residential care and people with advanced heart disease and advanced kidney disease. Our research team has also conducted world leading trials on nurse-led interventions to support patients to manage and prevent deterioration of hear t disease. Equally, our research highlights the necessary supports for family carers with whom the health service must work hand in hand to provide effective and compassionate care- see Cancer Caring Coping.

 

Theme Co-ordinator, Professor Kevin Brazil

Chronic Illness theme - Kevin Pic Resized

CURRENT AND RECENTLY COMPLETED PROJECTS

 

Principal Investigator

Project Title

Funders & Dates

Brazil, K. Prof. Promoting informed decision making and effective communication through advance care planning for people living with dementia and their family carers The Atlantic Philanthropies and HSC Public Health, 2014-2017
Brown, M. Prof. (*Co-Investigator) The views and experiences of the Mental Health Tribunal Service in Scotland: A mixed methods research study

Nuffield Foundation,

2017-2020

Fitzsimons, D. Prof. Development of a supportive intervention to meet the needs of carers of people with advanced heart failure

Chest Heart & Stroke NI

Sept 2017- Sept 2018

Fitzsimons, D. Prof. Exploratory study of the prevalence and experience of cardiac cachexia within a population of people with advanced heart failure in Northern Ireland

Chest Heart & Stroke NI

June 2018-June 2012

Fitzsimons, D. Prof. A study to improve pre-implantation information provided to patients and family members regarding ICD deactivation: An experimental co-design approach.

ESC Nurse Training grant

(03/07/2017-03/07/2018)

Galway, K. Dr. Adapting Digital Social Prescribing for Suicide Bereavement Support Medical Research Council, Proximity to Discovery Funding
McLaughlin, D. Dr. An Evaluation of a Hospice Enabled Dementia Partnership Project Atlantic Philanthropies and N. Ireland Hospice (2017-18)
McLaughlin, D. Dr. Reducing Hospital Admissions of People with Dementia from Nursing Homes: Anticipating Care Needs Regulation and Quality Improvement Authority (RQIA) (2016-18)
Noble, Helen. Dr. Palliative Care in chronic Kidney diSease (PACKS) study

NIHR Post Doctoral Fellowship

12/13 – 05/17

Noble, Helen. Dr. SOLITUDE - A pilot Study to examine perceived benefits of reflexOLogy in patIenTs Undergoing hospital baseD haEmodialysis Northern Trust Research and Development, Northern Ireland July 2017-July 2018
O'Halloran, P. Dr. TASYL: Transition to adult services research

Public Health Agency HSC R&D Division

2014 - 2017

O'Halloran, P. Dr. The Healthcare Passport Study

Marie Curie Research Grants Scheme

Jan 2017 - Dec 2018

Prue, G. Dr.

1.Movember GAP4: INTERVAL – MCRPC: INtense Exercise for survival with Metastatic Castrate-Resistant Prostate Cancer: a multicentre, randomised, controlled, phase III study.


2.EXACT-MCRPC: Exercise for advanced prostate cancer: a multicomponent feasibility trial in men with metastatic castration resistant prostate cancer.

Movember and HSC R&D Office
Reid, J. Dr. Establishing a clinical phenotype for cachexia in end stage kidney disease R&D Office PHA (01.09.16) & NIKPA (01.11.17)
Reid, J. Dr. MusiQual

Public Health Agency HSC R&D Division

2015-2017

Santin, O. Dr. Development of a Website to Help Cancer Caregivers Cope- Translating Evidence to Practice Knowledge Exchange Award - Public Health Agency HSC R&D Division
Ski, C.F. Dr. Achieving optimal health across chronic conditions in patients and carers via translating research, integrated public health outcomes and delivery (TRIPOD) Australian Government Collaborative Research Network
Thompson, D.R. Prof. Cardiovascular health and well-being Australian Government Collaborative Research Network

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