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Project Title

To develop innovative strategies to improve the pre-implantation information provided to patients and family members regarding ICD deactivation: An experimental co-design approach

Research Focus

Chronic Illness & Palliative Care

Funder & Dates

ESC Nurse Training grant  (03/07/2017-03/07/2018)

Principle Investigator or Primary Supervisor ( if PhD project)

Prof Donna Fitzsimons

Co-Investigators or additional supervisors

Prof Tiny Jaarsma ( Linkoping, Sweden)

Research Fellow (s) or PhD student

Dr Loreena Hill

Name & Institution of Collaborators

Professor of Nursing Science, Department of Social and Welfare

Studies, Linkoping University, Sweden.

Name of External Partner Organisation


Description of Project: Aim; Methods




To develop the core components of an educational tool for patients with an ICD & family members. The study uses an “experience-based co-design approach” over two phases.

Phase One: Qualitative interviewing. A purposive sample of 5 healthcare professionals from the BHSCT who manage patients with an ICD daily will be interviewed. Questions will be framed to explore their experience of providing information to patients and caregivers prior to ICD implantation.

Phase two: Interactive Workshop.  Results from phase one will be presented at a workshop, involving patients with an ICD, family members, healthcare professionals and clinical service managers. Through an interactive discussion three or four improvement priorities will be agreed that will inform the component of an educational intervention.   

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Prof. Donna Fitzsimons

Dr. Loreena Hill


Links/URLs to external pages, eg., study webpage, reports, publications etc



Hill L, McIlfatrick S, Taylor B, Dixon L, Cole BR, Moser D, Fitzsimons D. Implantable Cardioverter Defibrillator (ICD) deactivation discussions: Reality versus recommendations.  Eur J Cardiovasc Nurs 2016; 15(1): 20-9


Any other relevant information