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Home
News
Events
Rare Disease Day 2020
Research
COVID-19_Rare
Multiomics_PhD_Project_Katie
Carers Project Details
COVID-19
Charity_Survey
COCOON study: home & community delivered care
COVID-19 clinical impact
Shielding
IMPaCCT_study
REDRESS
People
Past team members
Patient and public partners
Charity partners
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Rare Disease Focus: supporting rare disease throughout all communities
Rare Disease Focus: supporting rare disease throughout all communities
Welcome
Rare Disease Focus
Raising awareness and supporting rare diseases throughout all communities
Research
Latest News
Laboratory Efficiency Assessment Framework (LEAF) Accreditation Received
11 May 2022
Welcoming the launch of the Northern Ireland Rare Diseases Action Plan 2022/23
22 September 2022
Welcoming the launch of A Cancer Strategy for Northern Ireland 2022-2032
22 September 2022
UK-wide Shared Commitments for Genomic Healthcare 2022 published!
18 September 2022
General Practitioners views and perceptions of rare disease across NI
20 September 2021
Sharing learning at the Irish Society of Human Genetics annual conference 2021
17 September 2021
View all news
Latest Events
COVISION webinar 2022
29/06/2022 @
11:00AM - 12:30PM
Online via zoom
RARE DISEASE FORUM: What’s new in rare disease research in Ireland?
8/06/2022 @
6:30PM - 8:00PM
Zoom
10K Sponsored Walk and 100K in May challenge for the NI Kidney Research Fund
14/05/2022 @
11:00AM - 4:00PM
Cutters Wharf, Belfast, BT9 5FJ
ATTR Amyloidosis All Ireland Conference
28/05/2022 @
9:30AM - 4:30PM
An Chúirt Hotel, Gweedore, Co. Donegal, F92 AP60
Rare Diseases Research across the Life Continuum
25/02/2022 @
1:00PM - 5:00PM
Remote public webinar - please register at the following Feb 2022 link: https://ucd-ie.zoom.us/webinar/register/WN_CjG11L7FQ26o-dh4PBMzJw
Northern Ireland Science Festival: The future of kidney research is STEAM powered
20/02/2022 @
1:00PM - 5:00PM
Crescent Arts Centre
View all events
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