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Local rare disease events

We hope you find this list of local rare disease events useful - please do email us to have your event added to this page.

slide with details of seminar

Learning more about advanced genetic testing - a prenatal perspective

Workshop / Seminar / Course

Date: 24/07/2020
Time: 1:00PM - 2:00PM
Location: Remote seminar - please join via Microsoft Teams

Rare Disease Day 2020

Conference / Symposium

Date: 28/02/2020
Time: 9:15AM - 4:00PM
Location: Riddel Hall:

Giant's Causeway 800x533

Rare Disease Research above and beyond

Lecture / Talk / Discussion

Date: 30/01/2020
Time: 1:00PM - 2:00PM
Location: Level 2 Seminar Room, Institute of Clinical Sciences, Block B, Royal Victoria Hospital

RARDTAC - carer focus

Community Event

Date: 16/01/2020
Time: 12:15PM - 2:30PM
Location: Bangor Carnegie Library Hamilton Road Bangor, Co. Down BT20 4LH

Rare diseases and specialised commissioning in England - genomics, research and access to medicine

Conference / Symposium

Date: 9/01/2020
Time: 8:30AM - 5:00PM
Location: The Caledonian Club, 9 Halkin Street, London SW1X 7DR

RARDTAC - living with a rare disease

Community Event

Date: 9/12/2019
Time: 10:00AM - 2:00PM
Location: Ards Blair Mayne Wellbeing and Leisure Complex 1 Dairy Hall Lane, Newtownards, BT23 4DB


UK Rare Disease Forum Conference

Conference / Symposium

Date: 29/10/2019
Time: 10:00AM - 4:00PM
Location: City of Edinburgh Methodist Church, 25 Nicholson Square, Edinburgh, EH8 9BX


2019 All Ireland Vasculitis Conference

Conference / Symposium

Dates: 4/10/2019 - 6/10/2019
Time: 4:00PM - 2:00PM
Location: Clare Lodge Holiday Centre

RariTea 2019

Community Event

Date: 4/03/2019
Time: 10:30PM - 2:30PM
Location: Harrison's of Greyabbey

International Rare Disease Day 2019

Conference / Symposium

Dates: 28/02/2019 - 28/08/2019
Time: 9:00AM - 2:00PM
Location: Chartered Accountants House, Pearse St, Dublin 2, Dublin, Ireland