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Home
News
Events
Rare Disease Day 2020
Research
Multiomics for rare disease diagnosis
Carers Project Details
Undergraduate research projects
Postgraduate research projects
COVID-19
Charity_Survey
COCOON study: home & community delivered care
COVID-19 clinical impact
Shielding
IMPaCCT_study
REDRESS
People
Past team members
Patient and public partners
Charity partners
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Rare Disease Focus: supporting rare disease throughout all communities
Rare Disease Focus: supporting rare disease throughout all communities
Latest News
Excellent meeting passionate North West group of carers supporting people living with rare diseases
8 March 2024
New survey seeking experiences of research by people living with rare diseases
29 February 2024
All-Ireland Children and Young Adults Research Advisory Group for Rare Diseases (RAIN CRAG) launched
29 February 2024
Dr Claire Hill at FameLab
21 February 2024
An Award to Celebrate
10 January 2024
Dubai International Pharmaceutical & Technologies Conference & Exhibition.
11 January 2024
View all news
Latest Events
24th International Conference on Integrated Care ICIC24 Belfast – April 22-24 2024
22/04/2024 - 24/03/2024 @
9:00AM - 5:00PM
ICC Belfast 2 Lanyon Place, Belfast, BT1 3WH
Accessibility and Inclusion Workshop on the Connswater Community Greenway
22/03/2024 - 23/03/2024 @
8:00AM - 11:00AM
Connswater Community Greenway
Cup O'Collaboration
4/03/2024 @
12:00PM - 1:00PM
Zoom https://ucd-ie.zoom.us/j/63352211883?pwd=OE53YXAvREVpeWhFY3kwaWVFTUxKUT09
Everyone can participate in the Global Chain of Lights and Share Your Colours!
29/02/2024 @
7:00PM - 8:00PM
Everywhere/Anywhere
Ulysses Neuroscience Rare Disease Day
29/02/2024 @
12:00PM - 4:00PM
Cherrywood Business Park, Co. Dublin
Ards and North Down Borough Council: Disability Employment and Support Day
28/02/2024 @
9:30AM - 1:00PM
Signal Centre Balloo Road, Bangor BT19 7PD
View all events
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#RareDiseaseNI
Welcome to our Rare Disease Focus
Raising awareness & supporting rare disease throughout all communities