We are privileged to have worked with many local and international experts, including policymakers and practitioners, funders, commercial partners, academic and clinical researchers, voluntary groups, charities including the Northern Ireland Rare Disease Partnership, patients, carers, families, and the general public to help drive forward positive progress for rare diseases in NI. Many of our research projects are initiated and driven by trusted expert patients and their families.
After multiple requests from our rare disease community, we're including on this website some examples of collaborative rare disease projects working with our charity partners. As you know, rare disease research is very collaborative so we have a lot of valued partners! Please bear with us as we develop this area of the website from July 2022.