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Charity partners

Genuine teamwork creating breakthroughs for rare diseases. Working together towards our common vision - an excellent investment for rare disease communities across NI and beyond.

We are privileged to have worked with many local and international experts, including policymakers and practitioners, funders, commercial partners, academic and clinical researchers, voluntary groups, charities including the Northern Ireland Rare Disease Partnership, patients, carers, families, and the general public to help drive forward positive progress for rare diseases in NI. Many of our research projects are initiated and driven by trusted expert patients and their families.