One of the primary roles of the Northern Ireland Cancer Registry is to provide a basis for undertaking population based research with the aim of improving the experience of patients and reducing the burden of cancer. The cancer registry can help answer research questions by:
- Undertaking analysis of routine registry data to answer a specific question: The cancer registry holds data on patient demographic characteristics, disease characteristics, clinical information including co-morbidities and treatment. Statisticians in the registry can help and advise in the analysis of registry data.
- Linking to other datasets: The registry data can be linked to other data sources to allow follow-up of patients to measure cancer risk or cancer survival. Previous examples include linkage to pre-malignant disease registers and screening databases.
- A sampling frame: The registry holds details on all patients known to have a diagnosis of cancer in Northern Ireland and has up-to-date information on their vital status. The registry can therefore help researchers establish population-based sampling frames for research studies, including surveys.
All research must be undertaken in compliance with the NICR Confidentiality and Data Protection Policy. To find out more about how the NICR can help you with your research please contact:
Dr Anna Gavin
N. Ireland Cancer Registry
Phone: +(44) (0) 28 9097 6028/6440