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Patient and public partners

image depicting rare disease PPI invite - general
Sharing expertise
Your rare disease needs more awareness when people & doctors say, "What"?

When we help each other out and share expertise, we make real progress moving forwards Stronger Together. Our rare disease team welcome conversations for new research ideas or contributing to current research at any stage. We have a local Rare Disease Patient and Public Involvement Committee who help us consider new research ideas, develop research and co-produce research outcomes. Expressions of interest to join this panel are always welcome - we need members with diverse experiences to help ensure we're performing the best research possible in the most efficient / effective / practical manner. Due to COVID-19, we have not refreshed our core PPI committee from 2020 and do not plan to re-engage until the pandemic is less concerning for many of our very vulnerable members.