This summary document of available resources identified through our RARDTAC project may be downloaded from here: https://pure.qub.ac.uk/en/publications/support-for-rare-disease-carers-in-northern-ireland 

Acknowledgements:  We thank all the individuals, patients, families, community groups, health, social, and educational professionals, colleagues, facilities managers, and participants who generously gave their time to attend our RARDTAC events and shared expertise to develop this document.  Your input is much appreciated.