SCHOOL OF NURSING AND MIDWIFERY PRIVACY NOTICE
WEIGHT LOSS AND HEART FAILURE STUDY
Queen’s University Belfast (“we”, “us” and “our”) is committed to protecting your personal data. The notice is addressed to participants of a study investigating weight loss and heart failure, which you have been asked to participate in (“you” and “your”). This Privacy Notice tells you why we need to collect personal information about you, what we will do with it, and how we will look after it. It also tells you about your legal rights in relation to your Personal Data. If you have any questions about this privacy notice, please contact us. Contact details are provided below.
WHO WE ARE
- We are Queen’s University Belfast, a university with a reputation for excellence in education and research and a member of the Russell Group. Founded in 1845 as Queen's College Belfast, we became an independent university in 1908. Specifically, this research is being conducted by members of staff from the School of Nursing and Midwifery, who have significant experience working in this area.
HOW YOUR PERSONAL DATA IS COLLECTED
2. Information you provide: When participating in this study we will ask for information about you, such as responses to questions about you age or marital status. This is known as your “Personal Data”. We may also ask you for some special categories of information (for example health information and one question concerning your sex life). This is known as your “Sensitive Personal Data”.
3. Data from other sources: We also collect information about you from other sources and this also forms part of “Personal Data”. This includes information from:Your medical records, which will be accessed to obtain information relevant to the study, such as your weight and blood marker levels.
HOW WE USE YOUR PERSONAL DATA
4. We use your Personal Data and Sensitive Personal Data in the following ways:
- We use your personal data to for administrative and communications purposes.
- We will analyse the data you provide (and medical record data) to determine how weight loss is linked to your heart failure diagnosis and how it is impacting your life.
- Audio recordings, where agreed, will be taken during interviews or focus groups for further analysis.
- Any audio data that is agreed to be collected will be transcribed.
- Data from this study may be published in academic journals or presented at conferences and other meetings. However, all data will be fully anonymised. Where quotes from interviews are used no identifying or personal information will be included.
LEGAL BASIS FOR COLLECTING AND USING YOUR PERSONAL DATA
5. We will only use your Personal Data if we have valid reasons for doing so. These reasons are known as our “legal basis for processing”. The legal basis for processing your Personal Data is:
- Processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.
And, the legal basis for processing your Sensitive Personal Data is:
- Processing is necessary for archiving purposes, scientific or historical research purposes or statistical purposes.
WHO WE SHARE YOUR DATA WITH
6. In line with our Data Protection Policy and Procedures we can share your information, including Personal Data and Sensitive Personal Data, with the following parties for the purposes set out above:
- Other members of the study research team.
- If you take part in an interview a medical secretary will transcribe the audio file form this interview.
DATA PROCESSING OUTSIDE EUROPE
7. We will not transfer your Personal Data and Sensitive Personal Data outside of the European Economic Area.
HOW LONG YOUR INFORMATION WILL BE KEPT
8. We will keep your Personal Data and Sensitive Personal Data for up to 5 years from the date of collection. We will only keep your information if we need it for one of the reasons described above. We place great importance on the security of the Personal Data that we hold, including the use of physical, technological and organisational measures to ensure your information is protected from unauthorised access and against unlawful processing, accidental loss, alteration, disclosure, destruction and damage.
9. The Data Protection Act 2018 provides you with a number of legal rights in relation to your Personal Data, including the right:
- to request access to your Personal Data;
- to request correction of your Personal Data that is wrong or incomplete;
- to request erasure or the restriction of processing of your Personal Data;
- to request the transfer of your Personal Data in a structured; commonly used machine-readable format;
- not to be subject to automated decision making; and
- to withdraw your consent.
10. If you wish to exercise any of the rights set out above, or require further information about any of the rights, please contact us.
11. There may also be times where we cannot stop using your Personal Data when you ask us to, but we will tell you about this if you make a request.
12. If you have any questions or comments about this privacy notice, the University’s Data Protection Officer can be contacted at:
Data Protection Officer
Queen’s University Belfast
13. You have the right to complain about how we treat your Personal Data and Sensitive Personal Data to the Information Commissioner’s Office (ICO). The ICO can be contacted at:
Information Commissioner's Office
CHANGES TO THIS NOTICE
14. We may update this Privacy Notice from time to time. We will notify you of the changes where we are required by law to do so.