The NICPR has been involved in research and audit activities since the early 1990’s. Surveillance of children with CP and associated research undertaken by the NICPR has:

1. Enabled development of new services, providing specialist care and targeted rehabilitation to children with CP in Northern Ireland;

2. Developed cost-effective tools to describe CP that have been adopted across NI and internationally, that improve communication between healthcare professionals and families and reduce clinical assessment burden; and

3. Informed UK and international standards of care, for example, NICE guidelines and a UK National Confidential Enquiry into Patient Outcome and Death (NCEPOD).

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