NICPR Research Projects
For more information on any of the projects listed below or if you are interested in conducting research please contact us. If you would like to read any of the publications associated with the research projects please visit our publications page.
CURRENT PROJECTS
Title | Social Inclusion for Disabled Children and Young People with Complex Needs in Northern Ireland |
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Principal investigators | Ms Michelle Stowell, supervised by Dr Claire Kerr, Dr Bronagh Byrne, Dr Fiona Lynn and Dr Karen McConnell (Queen’s University Belfast) |
Funding | Department for the Economy (Northern Ireland), CAST PhD studentship 2023-2026 in partnership with the Mae Murray Foundation |
Outline | The aim of this study is to explore social inclusion in disabled children and young people, including those with more complex support needs, from the perspectives of the disabled young person, their parent/carers, and other stakeholders. |
Title | Social participation in adults with cerebral palsy |
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Principal investigators | Ms Claire Cooper supervised by Dr Mark Linden and Dr Claire Kerr (Queen’s University Belfast) |
Funding | Department for the Economy (Northern Ireland), CAST PhD studentship 2021-2024 in partnership with Up - The Adult Cerebral Palsy Movement (https://upmovement.org.uk/) |
Outline |
This study seeks to understand the experiences of adults with CP (aged 24+) in Northern Ireland. Through a survey, we will gather information on factors that impact an individual’s quality of life and the barriers that affect their opportunities for social participation. We hope to find out what will improve the lives of disabled people and make suggestions to healthcare providers for improvements to the provision of support in adulthood. |
Title |
Surveillance of Cerebral Palsy in Europe (SCPE) network |
Principal investigators |
Drs Oliver Perra and Claire Kerr (Queen's University Belfast, P.I.), Dr Karen McConnell (Queen's University Belfast, Lecturer) & SCPE collaborators. |
Funding |
Public Health Agency & European Union, 1998-present. |
Outline |
The SCPE network is a collaboration of registers of children with cerebral palsy involving 24 active centres in 20 countries, including the NICPR. One of the aims of the SCPE network is to monitor trends in the prevalence of cerebral palsy over time and by severity. Visit the SCPE website or download a copy of SCPE privacy statement. |
PAST PROJECTS
You can view projects here.