Participate in Research Now
The following research projects are currently recruiting participants:
‘Involvement Matters’
HSC R&D Division have just launched a new project in association with the James Lind Alliance ‘Involvement Matters’, which aims to strengthen, improve and understand the priorities for Personal and Public Involvement (PPI) in Health and Social Care research across Northern Ireland.
The first step is to complete a short survey that should take approximately 10-15 minutes to complete. You can access it here.
They are keen to hear from PPI contributors, researchers, health and social care professionals, the community and voluntary sector, and people who are interested in being involved in research.
For more information about the project, visit their website and consider watching their accompanying PPI animation. They are also hosting a webinar on Tuesday 16th September 1pm-2pm where you can hear more about the James Lind Alliance, the aims of the project and why your input matters. There will be time for questions and discussion. To register please click here.
You are invited to take part in Round 1 of the CHESTI Study – an international e-Delphi survey to agree the most important outcomes to measure in chest health for children and young people with cerebral palsy (CP).
What’s Involved:
- This is the first of 3 survey rounds.
- Available in 7 languages.
- Takes 10–15 minutes.
- Voluntary and confidential.
- Open until: Sunday 5th October (23:59 UK time (BST/GMT)
Your views will help shape future chest health care in children with cerebral palsy.
To take part, scan the QR code or click the link here: https://clinicaltrials.plymouth.ac.uk/surveys/?s=CPKT3ATWWHW3DJ4K
You’ll access:
- A short study video and summary
- Consent and registration form
- The main survey to rate chest health outcomes
Who Can Take Part:
- Parents/carers and young people (aged 8–25) with CP
- Healthcare professionals supporting children with CP
- Researchers or academics with interest in this topic
Please share this invitation with a parent/carer or a young person with cerebral palsy, so we can hear their lived experience views!
The survey link is available in 7 languages and open to all who are interested!
Visit the CHESTI-study webpage here: https://www.plymouth.ac.uk/research/chesti-study
A feasibility randomised controlled trial of an online Exercise programme for adults with Cerebral Palsy
The team at the Royal College of Surgeons in Ireland (Dublin) are conducting a research study to deliver and evaluate an online exercise programme designed for adults with cerebral palsy (CP).
They are inviting adults with CP to take part in this study. Participants will be randomly assigned to one of two groups.
- The first group will join an eight-week online programme that includes weekly 60-minute group sessions focusing on improving strength, balance, and mobility. These sessions will also cover interactive topics such as pain management, fatigue, mental health, and maintaining physical activity, and participants will receive home exercise videos.
- The second group will receive educational resources on managing CP, covering the same topics, and will be given home exercise videos at the end of the 8- weeks.
To help them understand the impact of this programme, they will ask you to complete questionnaires before and after participating. They may also invite you to share your thoughts during a one-to-one discussion, which will help them improve the programme for other adults with CP in Ireland.
Before you decide whether or not to take part, it is important to understand why this research is being done and what it will involve. Please visit their website for more information https://bit.ly/cpexcelonline or contact Dr. Manjula Manikandan at (+353) 1402 8507 or email manikandanmanjula@rcsi.com.
Contribute to Understanding Pain in Adults with Cerebral Palsy
A research opportunity led by Rebecca Taylor, a postgraduate researcher at Ulster University who has personal experience with cerebral palsy, is conducting a study to explore how pain affects the physical, emotional, and social well-being of adults with cerebral palsy and those without it, allowing for a comparison between the groups.
Who can participate?
The project is seeking individuals from three groups:
1. Adults with cerebral palsy who live in the community – Whether you experience frequent pain or not, your experiences with cerebral palsy are invaluable.
2. Adults with chronic pain conditions unrelated to cerebral palsy—Your insights can help us compare the impact of chronic pain to pain in cerebral palsy.
3. Adults with no pain-related condition but a research interest—Help us understand the quality of life without pain or cerebral palsy for a comprehensive perspective.
What is involved?
· Participate in a 15-20 minute anonymous online questionnaire
· The survey is accessible, including compatibility with screen readers
Why participate?
This study will contribute to the development of knowledge for better tools for pain assessment and management, directly improving the quality of life for adults with cerebral palsy. Your input will address the gaps in cerebral palsy pain research.
Interested?
Click here to participate: https://app.onlinesurveys.jisc.ac.uk/s/ulster/pain-and-quality-of-life-questionnaire-participant-with-cp.
If you have any questions, contact Rebecca Taylor at Taylor-r31@ulster.ac.uk.