Current Research Projects
The following research projects are currently recruiting participants.
Action Cerebral Palsy Parent Survey
Action Cerebral Palsy are asking for feedback from parents about their experiences of the services they have accessed for their children and young people with cerebral palsy.
This survey will also serve as a follow up from the one that was conducted in 2014 for the Parliamentary Inquiry and will help to measure change, if any, in families' experiences since that original survey. The information gathered through this survey will also provide evidence to the current series of All-Party Parliamentary Group (APPG) sessions on Cerebral Palsy that focuses on the education, teaching and learning for children with cerebral palsy.
Complete the Action CP Survey
Do More Study
The DoMore study aims to find new ways to help children and young people with long-term disabilities, who are unable to walk, to move more in their daily routines.
The DoMore research team want to work in partnership with: (i) young people who use a wheelchair (aged 12-25), (ii) family members of children and young people who use a wheelchair, (iii) professionals working with children young people who use wheelchairs, and (iv) experts in disability, sedentary time and physical activity, to co-design a new programme that achieves this. Participants will contribute to a series of online workshops, involving anonymous online conversations or virtual focus groups. The team intends to include use of technology in the programme they develop together. Get involved! If you'd like to participate, please visit the DoMore website to sign up!
Find out more about the DoMore Study
What do you think about transition from children to adult services?
The National Confidential Enquiry into Patient Outcome and Death (NCEPOD) are currently developing a study to look at the transition of care from child to adult healthcare services.
They are looking for young people and parent carers to become involved with this work as focus group participants, participating in online and face to face focus groups (when possible) to help determine what matters to young people in the process of transition. For more information about the study please contact: transition@ncepod.org.uk
Find out more about NCEPODMAILING LIST
CLICK HERE
PUBLIC INVOLVEMENT GROUP
FIND OUT MORE